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Lessons learned in 20 years

posted 11/26/2007 12:03:55 AM |
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  stickshiftsally

Today was my youngest son's 20th birthday. I have celebrated the 20th birthday of two sons before him and they were each special, but this was different for several reasons. First, I no longer am the mother of teenagers...yes, I survived the teenage years! In addition to that, my youngest son, Alex, has taught me more about life than any one person I have known. Alex has Fragile X Syndrome. He has a seizure disorder that often requires CPR and is mentally handicapped. He has damage to the part of his brain that controls behavior, impulsivity and short term memory. His speech is difficult to understand by non-family members and he is a rather large young man due to the medication that controls his seizures. I'm absolutely certain that he must be frightening to the average person. In his teenage years, he was violent and extremely aggressive particularly toward me. For several years, I literally forced him to go to school while he pinched, punched and bit me while trying to jump from my moving vehicle on the way. There were many days when I cried all the way to work after dropping him off because I felt so helpless in caring for him. When he walked at his "graduation" there wasn't a dry eye in the stadium and I couldn't have been prouder of him. As his body has gotten older and his hormones have finally settled down (whew!) he has become a very kind, gentle and thoughtful young man. His mind is still that of a 6 year old--he cannot read and doesn't understand why he can't drive a car like his brothers. He would like to have a wife and family like his brothers, but is content to spend his time visiting the myriad of relatives that shower him with love and acceptance. His innocence and trusting nature are refreshing. I reminded my 5 year old grandson that he needed to be good because Santa's elves are watching and Alex quickly reminded me that they are watching him too and he's been VERY good this year. So Santa will visit Alex every Christmas as long as I have any say about it. His greatest joy is speaking to people over the phone or in person and he is totally nonjudgmental. His heart is wide open and he is the favorite uncle to my 4 and 5 yr, old grandsons. Today as we were travelling to his brother's he reached over and took my hand and said, "Mom, I 20 today, but I still be your baby." Oh, and did I mention he's a mind reader, too? Out of the mouths of babes...even 20 year old babes. Alex thought we were celebrating his birthday today, but in my heart, I was celebrating the priceless gift I received 20 years ago when God honored me by letting me be Alex's mother.

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Another reminder of the meaning of Christmas
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Comments:
newpatches

Nov 26 @ 12:27AM  
This is a very stirring blog and it touched my heart. Alex is special...but so is his mom and don't you ever forget that.

I have a handicapped granddaughter and a niece who is bi-polar and they are so special to me. My granddaughter has a speech impediment...her mind is ok, there's just a "short" between her brain and her speech center. She is also legally blind from lack of blood supply to her brain when the cord was wrapped around her neck at birth. Three years ago she had 2 steel bars put in her back for curvature of the spine. She is on medication for something I'd never heard of...cyclic vomiting syndrome. When she had her back surgery she had to go off that medicine and she vomited numerous...NUMEROUS times daily from July to October until her medicine finally kicked in.

You are a super lady and I admire you. God gave you a very special job to do and you did it admirably. (((((HUGS)))))) to you and yours.

Bonnie

P,S. I love ur username...maybe it's my age. I remember stick shifts...lol
koocnosaj

Nov 26 @ 12:32AM  
I'm always so grateful when I hear about such sacrificing love really exists in the world. This is love that God has given us, and for that, I'm thankful. Wonderful blog!
cartay25

Nov 26 @ 12:53AM  
Alex is a very lucky boy to get you for his mother. My own son will be 20 in a couple of months and I thank God every day that I have him.
napafungirl65

Nov 26 @ 3:41AM  
Congrats to you and Alex on your milestone. I myself have 4 sons, two of whom are "normal" teenagers. Normal being (add negative testosterone laced words here) lol. Even with the teenage hormones around here, my sons and I have the same closeness of you and Alex, However, I am sure, like their brothers before them, they will also move out and abandon me..oops, I mean have a life of their own where you will have Alex much longer. The fact that you have faced adversity and still raised an obviously thoughtful, kind young man can only mean You are truly blessed! This story left me with tears in my eyes. Good luck and God Bless you both!!!!
whatagal

Nov 26 @ 7:11AM  
Happy birthday to Alex!
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Lessons learned in 20 years