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Is it too late to hide?

posted 5/25/2008 3:20:42 PM |
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tagged: newspaper, changes
  cartay25

I mentioned a few weeks ago that our local paper interviewed me about a support group that I have started for Fibromyalgia sufferers. They even sent a photographer to our last meeting for pics to post with the article.

The article came out today and I made the front page of the Lifestyles Section. I asked my friend if it was too late to ask them not to print it and she thinks it is.

So to take one more step out into the light here is the link to the article from our online edition of the paper..........

Friendship through the fog

Copy & paste to friend: (Click inside box; Ctrl + C to copy; Ctrl + V to paste)

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Comments:
graywolf

May 25 @ 3:25PM  
great blog, great article and also a great photo of a really lovely lady,

Thanks for the link to the article. Good Job Cartay.
mailorderannie

May 25 @ 3:27PM  
Woohoo! Great job Cartay!

No need to hide sweetie, see this as the silver lining on a gray cloud.
ladybuy2008

May 25 @ 3:35PM  
We need more info on FMS - I have it too! Keep up the good work cartay! If you ever want to chat, look me up!
chatillion

May 25 @ 3:35PM  
What's it like being famous?
SallyF

May 25 @ 3:53PM  
Way to go, Cartay! The photo is lovely....interesting article on good work in progress.
luvmycats

May 25 @ 4:21PM  
Beautiful article from a beautiful lady. I didn't know you did this kind of work.

LoveME10der2005

May 25 @ 4:22PM  
Thanks for sharing Cartay...and now I understand your name too...lol

I have several friends who have this painful disease...sadly, they don't live near you for the meetings...
Annie544

May 25 @ 4:34PM  
Kudos Cart!!! You have accomplished alot in the past few weeks! I admire your strength. I didnt know you had this! I have a friend that has this condition and I wish she had a support group to go to also. Bravo Cart!! I proud to know you!
Rosie6512

May 25 @ 4:42PM  
Can I have your autograph???
katydid438

May 25 @ 5:16PM  
How wonderful and helpful for those afflicted...I know the frustration of having to lay down after doing just minimal chores..I have to save my energy for work and supporting myself...very frustrating and depressing too.
Support is definitely what we need.
lisa46

May 25 @ 5:51PM  
I know more famous people
skylar4

May 25 @ 6:03PM  
Great Blog Cart Informative info in the article. I can't think of a more compassionate lady to get the word out there. Stay with it ....your doing Great
newpatches

May 25 @ 7:55PM  
I'm impressed Carol....keep up the good work.

I remember the years when there wasn't any name for it and it wasn't recognized as a disease. I lived with it for years and was poo-pooed that I was making something out of nothing.

I wasn't tested for pressure points...to the doctor it became obvious what the problem was....that is after there was a name for it.

This disease affects different people in different ways...some of the symptoms I am lucky enough not to have. Here is what I've learned just from my own experience...these things work for me but maybe not for others.

Chocolate makes it flair....as does flavored water or carbonated drinks.

Moderate exercise helps with the stiffness....I walk alot.

Sugar or carbs worsens the pain.

Hot showers brings temporary relief when it's at its worse.

I am one of the lucky ones that can take Celebrex...it nearly eliminates all the suffering for me. Without it I don't think I could function.

You keep doing what you're doing...this is still new enough that information on it needs to be spread and taught. Thanks for posting this blog and article...and what a good picture....you are such a pretty lady.

kattsmeow

May 25 @ 8:22PM  
Thank you, for talking about something a lot of people think is all in a persons head.

~*~
signme

May 26 @ 12:18AM  
You can't run.....You can't hide! LOL You are the best! keep up the good work.
EmmeS61

May 26 @ 12:22AM  
Wonderful work!! You look damn good out in the light. Keep on shining!!

georgiapeach42

May 26 @ 1:04AM  
You said in the article that you were not very active, but believe it or not the more you move the less you will hurt. I have had fibromyalgia for 10 years now too. I was diagnosed when my son was one year old. And yes it was truly hard for me when I had days where I could not hold my son, wear clothes, have to stay home from work and just lay in the bed naked with just a sheet over me because it hurt to have anything touching me. I had pain specialist look at me and tell me that they could not help me. I even got to the point where I was suicidal and was put in the hospital.

But I didn't give up on my life I found a way to adjust my lifestyle so that I actually am pain free 80% of the time and even on painful days my pain level is only about a 6 at most.

The things I changed...

My clothes was first, instead of my regular clothes I bought 100 rayon and made several dresses. It is very light weight and I can have something to wear even if I can't wear my underclothes.

I get my 8 hours of sleep even if I have to take sleeping pills. People with FMS don't go into the 3rd and 4th stage of sleep so sometimes we have to have help.

I try to control my depression, if I am depressed, I hurt, if I hurt I get depressed. It is a vicious cycle.

Cold temperatures hurt because it causes my muscles to tense up. So stay warm.

And I am very active. I work on average 50 hours a week at a convenience store.

And I take a drug called Zanaflex, it is a muscle relaxer that works in your brain stem. This is where the pain actually starts, your brain misfired and your pain receptacles don't shut down lie they should. This is why most pain medications don't work very well.

I hope that someday you can have a pain reduced life.
EternalFlame

Jun 1 @ 10:08AM  
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