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Chiari's malformation


May 20 @ 5:41 PM Chiari's malformation    
lady4u893


Posts: 2
I had a MRI and I have one doctor telling me not to worry that its okay... and another doctor telling me I might wanna see a neurosurgeon. Was hoping maybe there is others that can help me... full of questions but not sure what to do.
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May 22 @ 11:43 PM Chiari's malformation    
Gallows_Humor


Posts: 6,389
Chiari's Syndrome
This may be the cause of chronic fatigue for people in their teens and 20s.


In some cases, chronic fatigue can be caused by pressure on the nerves in the neck or the base of the brain. The name for this is "Chiari's Syndrome". It is genetic malformation at the base of the skull. Surgery may be able to correct the condition.

Chiari's Syndrome is a genetic condition in which a malformation at the base of the skull presses on the base of the brain causing chronic fatigue. It usually shows up by the late teen years.

Chiari's syndrome was first described by Dr. Chiari over 100 years ago. It can cause chronic fatigue in some people. Other neck injuries can also cause fatigue. If you have neck problems, you may want to consult a reputable neurosurgeon and get an MRI. If your CFS began in your teens or early twenties, it may be worthwhile to investigate this.

Chiari and other neck problems are being diagnosed with greater accuracy these days. Many neck injuries do not show up on X-ray. It was not until recent years and the availability of MRIs that a good diagnostic tool was available.

It is difficult to know who will benefit from surgery and who won't. There are a number of different possible procedures and it has been difficult to know which one to use. Great advances have been made in this area in the last year and even in the last few months alone. Several studies have been published which shed much light on these issues.....

it's a b rave new world regarding fibromyalgia /chronic fatigue syndrome..

imho....everything depends on how debilitated you are right now.. vs what could happen if the surgery goes wrong...

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May 23 @ 1:42 AM Chiari's malformation    
SunBabe


Posts: 12,088
Oh! I didn't find that when I checked out Chiari's malformation (because I was curious -- I'd never heard of it)

But crimeny, I can easily see now how it could be related to CFS/Fibro ...including those who have an onset after a trauma.

VERY interesting, Gallows...and MAYBE something tangible for a change.

(I can also appreciate any hesitation about surgery. That's a pretty sensitive and vulnerable area back there -- although if it was suggested to me, at this moment, I'd go for it in a heartbeat -- even if the surgery would leave me homeless and in debt for the rest of my life.)
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Jun 30 @ 8:47 AM Chiari's malformation    
erehmai


Posts: 4
Don't ever be fooled into thinking ..."doctors know everything!"... Twenty months ago, one of my sisters was told that the little thing near her eye was not cancerous! she went to another doctor and she was very quickly BOOKED INTO SURGERY! Seriously!!! It looked like someone had taken to her with a baseball bat with the bruising after the operation.

Funny thing is... same thing happened to me. This.. ummmmm!... skin SPECIALIST that I went to laughed at me when I said I was concerned about this lesion near my eye. she said it was NOTHING! Eighteen months later I went back to her and I think she realised she made a big boo-boo! coz this thing had GROWN!!! A few weeks later I am here with 25 stitches on my face and 4mm of face taken out!

The moral is..... always get a second opinion if you can.
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Jul 24 @ 5:48 PM Chiari's malformation    
gypsy29


Posts: 99
If your searching, you may look into "arnold chiari malformation" You'll get more info, I believe.

I have a friend with this, and she has severe headaches and fibro. It sucks. If it is severe enough, it can be fatal, so you will want to get that neuro consult. My friend has know about it for 8 years. so no worries.
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